Session 2 – Developing a PRO measure
In this session, Dr. Pusic will focus on the important of qualitative research methods to establish content validity for new PROMs. We will review the best practices for the development of a PROM. Dr. Michael Wu will talk about LARYNX-Q, a new PROM for assessing health-related quality of life of patients with total laryngectomy and Dr. Manraj Kaur will share the development of the GENDER-Q, a PROM for use in gender-affirming healthcare.
Dr. Pusic is the Director of the PROVE Center, the Chief of Plastic and Reconstructive Surgery at Brigham and Women’s Hospital, and a Professor of Surgery at Harvard Medical School. She is a leader in the field of patient-reported outcomes with over 300 publications on this topic. Her research involves developing and implementing tools to access outcomes from the patient perspective.
Dr. Wu is a 4th year resident in Otolaryngology-Head and Neck Surgery at Harvard. He graduated from Harvard College with a degree in molecular and cellular biology and obtained his medical degree from Harvard Medical School. His main interests are functional outcomes and quality of life in patients with head and neck cancer.
Dr. Kaur is a health economics and outcomes researcher with extensive experience in the measurement of patient-reported outcomes in clinical research and practice and in conducting micro-costing and cost-effectiveness studies.
Session 1 – Introduction to PRO measurement
In this first session, Dr. Pusic will kick off our PROMs Summer School Series with a brief overview of the weeks to come and give us an outline of what PROMs are and why they are important for research and caring for patients. Next, Dr. Sidey-Gibbons will introduce modern psychometric methodologies used to create rigorous tools to assess intangible health-related phenomena such as quality of life, satisfaction, and psychological function. The talk introduces foundational concepts such as reliability and validity and summarizes cutting-edge techniques including item response theory and computerized adaptive testing
Dr. Pusic is the Director of the PROVE Center, the Chief of Plastic and Reconstructive Surgery at Brigham and Women’s Hospital, and a Professor of Surgery at Harvard Medical School. She is a leader in the field of patient-reported outcomes with over 300 publications on this topic. Her research involves developing and implementing tools to access outcomes from the patient perspective.
Dr. Sidey-Gibbons is Associate Professor and Deputy Chair at the MD Anderson Department of Symptom Research and Director of the MD Anderson Center for INSPiRED Cancer Care. His research is concerned with the development and implementation of tools to collect, analyze, and predict patient-reported outcomes. He is Director of Health Assessment and Innovation at the University of Cambridge Psychometrics Center where he teaches courses on modern psychometrics, programming, and data science.
PROMs Summer School 2021 – Week 4
Dr. Sidey- Gibbons will introduce modern psychometric methodologies used to create rigorous tools to access intangible health-related phenomena such as quality of life, satisfaction, and psychological function. The talk introduce foundational concepts such as reliability and validity and summarize cutting-edge techniques including item response theory and computerized adaptive testing.
Dr. Sidey-Gibbons is Associate Professor and Deputy Chair at the MD Anderson Department of Symptom Research and Director of the MD Anderson Center for INSPiRED Cancer Care. His research is concerned with the development and implementation of tools to collect, analyze, and predict patient-reported outcomes. He is Director of Health Assessment and Innovation at the University of Cambridge Psychometrics Center where he teaches courses on modern psychometrics, programming, and data science.