In this talk, we will discuss the patient-level barriers to completion of patient-reported outcomes measures (PROMs) and delve into one specific barrier: low literacy. We begin by reviewing the frameworks currently used to conceptualize the implementation of PROMs and how they influence our awareness of existing barriers. We then focus on how patients’ literacy levels specifically affect PROM completion. We share our group’s ongoing work of designing a multimedia PROM that aims to expand our ability to capture PROs in low literacy populations and promote equity and inclusivity in PRO measurement.
Dr. Chao Long is a surgeon-scientist who conducts health services research aimed to increase access to high quality, patient-centered, and affordable surgical care in the US and abroad. Her current research centers on promoting equitable evaluation of patient-reported outcomes in low literacy populations. She is currently a PGY-4 plastic and reconstructive surgery resident in the Johns Hopkins/University of Maryland program. She received her MD from Stanford University, her MPH from Johns Hopkins Bloomberg School of Public Health, and her bachelor’s degree from Princeton University.